PhD Scientific Days 2020

Mental Sciences II. Posters

Parents’ Perspective on Medical Communication During the Transition to Palliative Care in Pediatric Oncology

Előadó neve

Földesi, Enikő

Előadó munkahelye

Pedagogical Professional Services, Pest County

Előadó telefonszáma

+36 30 3899265

Előadó e-mail címe

foldesie@gmail.com

Az előadás címe

Parents’ Perspective on Medical Communication During the Transition to Palliative Care in Pediatric Oncology

Szerző(k) neve és munkahelye

Enikő Földesi1, Szilvia Zörgő2, Péter Hauser3, Judit Nyirő3, Katalin Hegedűs2
1 Pedagogical Professional Services, Pest County
2 Semmelweis University, Faculty of Medicine, Institute of Behavioural Sciences
3 Semmelweis University, 2nd Dept of Pediatrics

Szekció

Mental Sciences II. Posters

Language of the presentation

Hungarian

Section, first choice

Mental Sciences

Section, second choice

Health Sciences

Összefoglaló szövege

Introduction: The treatment of pediatric malignant diseases with poor prognosis affects the whole family. Several models have been developed that address the timing of curative and palliative elements in the treatment process. Literature suggests that in instances of poor prognosis, communication about the integration of palliative care should begin early, yet everyday practice and experiences of doctors and parents may differ.
Aim: To explore the parents’ perspective on features and circumstances of medical communication during the transition to palliative care, in order to develop recommendations for more effective doctor-parent communication.
Methods: Semi-structured interviews comprised of 18 questions were conducted with parents who had lost their child to cancer within the past 1-5 years. Questions explored parents’ experiences and the circumstances of the transition to palliative care; demographic data of each participant was also recorded. Recruitment occurred by phone via main centers of Hungarian pediatric oncology care; a clinical psychologist conducted all interviews. Transcribed and narratives were scrutinized with Interpretative Phenomenological Analysis.
Results: As of now, preliminary analysis has been performed on 23 interviews. Free (inductive) coding, the first step in our analytical process, yielded the following codes that will be used to develop the final code tree: Participants of the conversation (subcodes: psychologist, spouse/partner, other), Language (subcodes: positive/negative appraisal of communication, use of word “death”), Institutional support in grief (subcodes: needed, not needed, needed from other resources) and Behavior towards child (subcodes: changed, not changed). Coding suggests that the presence of a psychologist during conversations about palliative care and institutional support in grief are favored by parents, appraisal of direct communication and use of the word “death” is varied.
Conclusions: According to our preliminary results, ensuring psychological support throughout the treatment process would be beneficial to doctor-parent communication. The salience and reasons behind preference for direct and indirect communication need to be explored further to formulate recommendations.

Additional Information

Supervisors:
Katalin Hegedűs
Péter Hauser
hegedus.katalin@med.semmelweis-univ.hu
hausepeti@yahoo.com

Bemutatás módja

Poszter

Kind

Szabad

Status

elfogadva

Accepted presentation method

poszter

Előadás fájl jóváhagyás

nem rendelkezett róla

Előadó

4122

Start

12:28

End

12:31

Authors (legacy)

Enikő Földesi1, Szilvia Zörgő2, Péter Hauser3, Judit Nyirő3, Katalin Hegedűs2
1 Pedagogical Professional Services, Pest County
2 Semmelweis University, Faculty of Medicine, Institute of Behavioural Sciences
3 Semmelweis University, 2nd Dept of Pediatrics