PhD Scientific Days 2022

Mental Health Sciences I. (Poster discussion will take place in the Aula during the Coffee Break)

A Hungarian-inhabited area-wide study about the quality of life of adolescents with Cerebral Palsy participating in conductive education

Előadó neve

Mladoneczki-Leszkó, Dóra, MSc

Előadó munkahelye

Magyar Honvédség Egészségügyi Központ

Előadó telefonszáma

06313136928

Előadó e-mail címe

leszko.dora@gmail.com

Az előadás címe

A Hungarian-inhabited area-wide study about the quality of life of adolescents with Cerebral Palsy participating in conductive education

Szerző(k) neve és munkahelye

1 Dóra Mladoneczki-Leszkó, PIC conductor/ Magyar Honvédség Egészségügyi Központ, Budapest
2 Rebeka Surányi, Data Analyst and Statisticia/Eötvös Loránd University, Budapest
3 Dr. Anna Kelemen PhD Med. Habil., Neurologist, child neurologist/ Országos Klinikai Idegtudományi Intézet, Budapest

Bemutatás módja

Szóbeli

Szekció

Mental Health Sciences I. (Poster discussion will take place in the Aula during the Coffee Break)

Language of the presentation

Hungarian

Preferred session

Mental Sciences

Összefoglaló szövege

Cerebral palsy (CP) is the most common cause of neurodevelopmental disability. It affects the development of movement and posture, causing activity limitations that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. A combination of these influences the quality of life (QOL) of teenagers living with CP.
Conductive education is a pedagogical rehabilitation method. One of the main aims of conductive education (CE) is to improve QOL in CP, despite it being a lifelong disorder.
Our study included young adolescents with CP participating in CE and their families living in Hungary and Hungarian-speaking families from Slovakia, Romania, and Ukraine.
The Cerebral Palsy Quality of Life for the adolescent questionnaire (CPQOL) was translated and validated into the Hungarian by Semmelweis University Pető András Faculty in 2017. 40 young adolescents with CP (22 male, 18 female) aged 13-18 years (mean age: 15,25) and their family members (n= 40) were selected through convenience sampling based on inclusion criteria from CE schools. All data were analyzed by SPSS.
The analysis of the data showed a negative correlation in the Hungarian-speaking group between teens and caregivers on the following topics: toilet use and pain management (-0,623), specialist services available in the community and access to respite care (-0,882). The high correlation between having cerebral palsy and the ability to control pain (-0,752) and the ability to cope with pain (-0,754) is noteworthy because only the Hungarian teenagers group thought so. Based on these, we can assume that Hungarian adolescents think the less they are annoyed by CP, the more they can cope with pain, even if they have a poor motor function.
Based on the findings of this research, there aren't any differences between Hungarian and Hungarian- speaking families living in Slovakia, Romania, or Ukraine. Our work has led us to conclude that, the caregivers often assess the situation not with the teenager’s eyes but with their own. It is important to emphasize that an individual’s needs shape his or her QOL.

University and Doctoral School

Semmelweis University, Doctoral School of Mental Health Sciences

Supervisor

Anna Kelemen

Publication of my abstract

I give consent to the publication of my abstract on the website of the congress.

Kind

Szabad

Status

elfogadva

Accepted presentation method

szóbeli

Előadás fájl jóváhagyás

nem rendelkezett róla

Előadó

5981

Start

09:45

End

10:00

Authors (legacy)

1 Dóra Mladoneczki-Leszkó, PIC conductor/ Magyar Honvédség Egészségügyi Központ, Budapest
2 Rebeka Surányi, Data Analyst and Statisticia/Eötvös Loránd University, Budapest
3 Dr. Anna Kelemen PhD Med. Habil., Neurologist, child neurologist/ Országos Klinikai Idegtudományi Intézet, Budapest