PhD Scientific Days 2024

Health Sciences II.

Home Based Online Pain Management Support System for Children with Cancer

Előadó neve

Bay, Betul, MSc

Előadó munkahelye

College of Medical and Dental Science/ School of Nursing and Midwifery

Előadó telefonszáma

07470587311

Előadó e-mail címe

BXB179@student.bham.ac.uk

Az előadás címe

Home Based Online Pain Management Support System for Children with Cancer

Szerző(k) neve és munkahelye

Betul Bay¹

1: College of Medical and Dental Science/ School of Nursing and Midwifery

Bemutatás módja

Szóbeli

Szekció

Health Sciences II.

Language of the presentation

English

Preferred session

Health Sciences

Összefoglaló szövege

Introduction: Pain is a prevalent and distressing symptom impacting both CYP and their parents within the home setting. Despite available home pain management strategies, parents often encounter challenges in accessing timely and reliable information. While digital health technologies present promising solutions, a comprehensive, UK-specific home-based pain assessment and management app is currently lacking. Addressing this gap requires research centred on end-user perspectives to ensure the development of user-friendly and effective digital resources tailored to the unique needs of CYP and parents.
Aim: To inform the design of a digital resource to improve the pain experience of CYP with cancer pain and their parents in the home setting.
Design: This study is a qualitative exploration to identify the needs of CYP with cancer pain and their parents about a home cancer pain management.
Method: Caregivers who have experience of caring for a child with cancer-related pain at home. Caregivers participating in this research were recruited through a social media campaign and charitable/organisation newsletters. Preliminary data, comprising online interviews, are currently under presentation.
Results: The research findings reveal several key themes concerning the management of pain at home for children with cancer. Caregivers express a strong desire for accessible and reliable digital resources that empower them to effectively address their child's pain. Moreover, caregivers place a high value on the trustworthiness and endorsement of such resources by reputable healthcare providers or organizations. Additionally, caregivers highlight the need for intuitive navigation, minimal complexity, and clear organization of content to alleviate feelings of overwhelm and anxiety when accessing information.
Conclusion: The potential benefits of digital pain management, both now and in the future, include ensuring user-friendly and effective digital resources tailored to the unique needs of children and caregivers, as well as gaining important perspectives from end users.
Acknowledgement: The study is funded by the Republic of Turkey.

University

University of Birmingham

Supervisor

Amelia Swift, Susan Neilson, Lucille Kelsall-Knight, Alison Twycross

Publication of my abstract

I do not give consent to the publication of my abstract on the website of the congress.

Kind

Szabad

Status

elfogadva

Accepted presentation method

szóbeli

Előadás fájl jóváhagyás

nem rendelkezett róla

Előadó

8046

Start

12:00

End

12:10