PhD Scientific Days 2024

Poster Session S - Health Sciences 2.

“Breaking bad news is more difficult…”: Healthcare professionals’ perspectives on challenges in providing end-of-life care in paediatric intensive care units in Indonesia

Előadó neve

Adistie, Fanny

Előadó munkahelye

University of Birmingham

Előadó telefonszáma

+447415235002

Előadó e-mail címe

fxa082@student.bham.ac.uk

Az előadás címe

“Breaking bad news is more difficult…”: Healthcare professionals’ perspectives on challenges in providing end-of-life care in paediatric intensive care units in Indonesia

Szerző(k) neve és munkahelye

Fanny Adistie^1,2, Susan Neilson¹, Karen Shaw³, Henny Suzana Mediani², Nikolaos Efstathiou^1,4

1: School of Nursing and Midwifery, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom
2: Faculty of Nursing, Universitas Padjadjaran, Paediatric Nursing, Sumedang, Indonesia
3: Institute of Applied Health Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom
4: School of Nursing, Faculty of Health Sciences, University of Ottawa, Ottawa, ON, Canada

Bemutatás módja

Poszter

Szekció

Poster Session S - Health Sciences 2.

Language of the presentation

English

Preferred session

Health Sciences

Összefoglaló szövege

Introduction
Despite the paediatric intensive care unit (PICU) primary focus on curative or life-sustaining treatments for seriously ill children, death in this setting also occurs. The high expectation of a child’s survival in PICU might cause a devastating feeling for parents/family when the child dies and presents unique challenges for healthcare professionals (HCPs).
Aims
This study aims to delve into the nuanced experiences and challenges HCPs face in delivering end-of-life care to paediatric patients within PICU settings.
Method
A qualitative study using constructivist grounded theory was employed. Semi-structured interviews were conducted with 25 HCPs (physicians, nurses, pharmacists, and nutritionist) in four PICUs in Indonesia. A constant comparative method was used to analyse the data.
Results
Seven categories emerged: (1) Breaking bad news; (2) Involvement of palliative care team; (3) Socio-cultural and religious aspects; (4) Parent/family expectations; (5) Parent/family decision-making; (6) Illness trajectory of PICU patients; and (7) Healthcare system.
Conclusion
Through a more profound understanding of the multifaceted challenges HCPs encounter when providing end-of-life care in PICU, the following recommendations could reduce challenges experienced by HCPs during end-of-life care in PICU: (1) Improving HCPs' communication skills; (2) Supporting shared decision-making; (3) Consideration of Indonesian socio-cultural and religious context; and (4) Involving palliative care specialists in PICUs.
Funding
This study is funded by the Indonesia Endowment Fund for Education (LPDP).

University

University of Birmingham

Supervisor

Dr Nikolaos Efstathiou, Dr Susan Neilson, Dr Karen Shaw

Publication of my abstract

I give consent to the publication of my abstract on the website of the congress.

Kind

Szabad

Status

elfogadva

Accepted presentation method

poszter

Előadás fájl jóváhagyás

nem rendelkezett róla

Előadó

7975

Start

16:05

End

16:08