PhD Scientific Days 2024

Mental Health Sciences I.

Examination of the burden of family members caring for a demented patient - the relationship between information and workload for family members

Előadó neve

Ms. Dallos, Rita

Neptun code

AGPRGL

Előadó munkahelye

Semmelweis University, Doctoral School of Mental Health Sciences

Előadó telefonszáma

+36308452226

Előadó e-mail címe

dallosritabernadett@gmail.com

Az előadás címe

Examination of the burden of family members caring for a demented patient - the relationship between information and workload for family members

Szerző(k) neve és munkahelye

Rita Dallos¹

1: Semmelweis University, Doctoral School of Mental Health Sciences

Bemutatás módja

Szóbeli

Szekció

Mental Health Sciences I.

Language of the presentation

Hungarian

Preferred session

Mental Health Sciences

Összefoglaló szövege

Introduction
The burden of family members caring for a demented patient puts a huge burden on the health and social care system. There are nearly 60 million dementia patients worldwide, who are mostly cared for by family members.

Aims

Our goal is to map the care-related information and knowledge of relatives caring for person with dementia (PwD). We examined the prevalence of their mental health conditions, as well as which factors influence their development.

Methods

In our research, we conducted online questionnaire data collection (n=191) and personal interviews (n=23) with family members who have been caring for a PwD. The results were processed using descriptive and comparative statistical methods and content analysis. Pearson's correlation and Spearman's correlation were used to compare the variables.

Results

The average age of those filling out the questionnaire is 55,32 years, 84,3% of them are women. On average, they spend 10,6 hours a day caring for their relative, for an average of 3,68 years.

One of the reasons for psychological stress (Farran's scale) is the lack of information, a significant, moderately strong positive relationship can be measured (Spearman rho=0.348, p<0.001). 30,5% of responders had knowledge of dementia before care. 75% of caregivers look for answers to their professional questions by browsing the Internet, nearly 60% on social media sites.

Lack of information and emotional burden (Zarit Burden Interview), as well as the appearance of depression symptoms (Beck Depression Inventory) show a moderately strong association, with Spearmans rho=0,592, p<0,001 value.

Conclusion

In addition to prevention, the support of family caregivers must begin immediately after the diagnosis of a PwD, as the correlation between lack of information and workload can be demonstrated.

In the future, we consider it necessary to hand over a complex, insightful information booklet to relatives when the first symptoms appear, in which they will also receive information about the disease, care tasks and psychological, mental, physical and financial support.

Funding

This was a PhD-grant founded study.

University

Semmelweis University

Supervisor

Dr. Ádám Szilvia

Publication of my abstract

I do not give consent to the publication of my abstract on the website of the congress.

Kind

Szabad

Status

elfogadva

Accepted presentation method

szóbeli

Előadás fájl jóváhagyás

nem rendelkezett róla

Előadó

7516

Start

12:00

End

12:10